Our Story

Learn About Us

Ataxia with Oculomotor Apraxia Type 2 (AOA2) is a rare neurological disease. For families, such as ours, who are affected by it, life is never the same. Unfortunately, AOA2 tends to begin in late adolescence, leaving patients unable to drive, walk, write, and handle their own basic daily needs. Common symptoms of AOA2 include balance problems, tremors, loss of motor skills, double vision, and muscle weakness. This page is dedicated to sharing our story and raise awareness about AOA2. Although we must use a wheelchair and AOA2 has robbed us of the ability to live independently, we remain optimistic about the future, thanks to UCLA’s Brent Fogel, M.D., Ph.D. who is determined to find a cure for AOA2. He is one of a handful of investigators specifically researching AOA2.

 

Premiers November 2, 2018!

We Are Strong
A True Story of the De Mint Family

Click here to watch the trailer and learn more about an upcoming film featuring our real life struggles and challenges. Stayed tuned for the premier location and ticket information!

“We are on a mission to find a cure for Ataxia. We will fight. We will not give up until we find a cure, because we are strong.”